Life Lately: Week 1

Happy hump day y’all! This week I’m launching a new segment on the blog called life lately. With everything going on in my life right now it’s so much easier to sit down and write about all of the updates on here rather than individually calling and texting our loved ones.

So, here goes nothing!

The last week has been pretty good to us. We’re gearing up to take Tristan home within the next month and I couldn’t be happier. This is our 4th attempt to go home so fingers crossed that we actually make it out the door this time. We’ve been in the NICU for almost 5 months and honestly it’s draining. NICU life will challenge every aspect of your life. It will test your patience, your marriage, professionalism, faith, and your parenting skills. The one good thing that I can say about being in the NICU is that some of the staff have become like family. I couldn’t have asked for a better team of people to care for my baby boy. This experience has brought me closer together with my husband and every day I realize how lucky I am to have him by my side.

The process to go home isn’t an easy one and has been sort of a headache but we’re blessed to have an amazing family counselor that has been helping us get everything situated. Between scheduling our post-discharge appointments and finding a nursing agency this week has been a little chaotic.

Good news though is that Tristan had his first bottle feed and was successful. For those of you that haven’t been following along with Tristan’s story on Facebook or Instagram, Tristan currently gets all of his milk through a g-tube. A g-tube also known as a gastronomy tube inserted into his abdomen and goes directly into his stomach. Most trach babies get a g-tube because they have a higher risk of aspirating (choking) when swallowing. Tristan has a cleft palate so his risk of aspiration is doubled. So when he was successful at his first bottle feed I nearly almost cried. We’ll try a few more times to see how he does but with every bottle that he takes there is a risk of choking. For that reason the only people that will ever feed him while he has his cleft and trach will be Dad and I, and of course his speech therapist.

In other news, Tatiana’s birthday is in just 2 days and I can’t wait. I can’t believe that she’s turning six already. Time flies by so fast! We did a special birthday shoot that I’ll be sharing on Friday so stay tuned for that. The pictures are super cute! To celebrate her birthday this year we’ll be going skating with a few friends on Saturday and hanging out at Aquatica if the weather is warm enough.

Oh and last but not least, I’m so excited that I’m able to share an event with you all that’s so close to my hometown! Smokey Bones Bar & Fire Grill – Melbourne, FL is hosting the reopening of its newly renovated restaurant and partnering with KISS 95.1 and DJ Wingnut. Come out to join the free event today from 2-4 PM where you’ll be the first to preview the newly remodeled store and enjoy giveaways, a live DJ performance throughout the day. Don’t forget to bring your friends and families as this will be a fun-filled day for all!

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